The WiSSP Resource Library

 Wisconsin Stillbirth Service Program


internet web sites

WiSSP - The Wisconsin Stillbirth Service Program

http://www.wisc.edu/wissp

This is the web site for our program.  It is quite comprehensive, containing sections specific to the needs of both parents and professionals, as well as a glossary, bibliography, and an on-line version of our newsletter, WiSSPers.

SHARE-Pregnancy and Infant Loss Support, Inc.

http://www.NationalSHAREOffice.com/

SHARE explains, in their website, their program's purpose and the services they provide.  This site does a good job of letting the visitor know what resources are available, with areas to visit that include the SHARE newsletters, starting your own SHARE group, listings of upcoming conferences, and links to a few relevant sites. 

Hygeia

http://www.hygeia.org/

Hygeia is aptly described as an "Online Journal for Pregnancy and Neonatal Loss." One section is monthly articles, written mostly by members of the Yale University medical staff (Hygeia's website creator, Dr. Michael Berman, is an Associate Clinical Professor at Yale's University School of Medicine, Dept. of Ob/Gyn); topics have included intrauterine growth retardation, ectopic pregnancy, molar pregnancy, and placental causes.  Other sections include a Visitor's Contribution area for sharing, e-mail registries for both families and caregivers, a complete volume of Poetry, and a Memories area for posting of pictures or other mementos.  Its emphasis on both emotional healing and medical information makes this probably the most complete of the websites that currently exist. 

H.A.N.D.  Houston's Aid in Neonatal Death

http://www.hern.org/~hand

H.A.N.D. is a peer support group for parents in the Houston area whose babies have died any time from conception through late infancy.  The website is quite thorough offering information about grief reactions, available H.A.N.D. resources, creating memories, issues for the caregiver,  H.A.N.D. newsletter, and a poetry collection.  Like most websites they offer a Helpful Links section, and they did a nice job of summarizing these links' contents.

Complications of Pregnancy

http://www.childbirth.org/articles/comp.html

This site covers a broad range of topics, not solely issues relating to pregnancy loss.  Topics covered include Group B strep, diabetes, and low birth weight.  In the pregnancy loss area one can also click on diverse areas, from "Immunetherapy and Pregnancy Loss" to "Stop that junk mail."  While this website contains information on a wide variety of topics, where you are going or what you will see is always clear.  Some links were pamphlets by specific groups, others were resource lists from Medline, and others were links to related sites. 

Pregnancy and Infant Loss Network

http://sids-network.org/pil.htm

PILN is an extension of the SIDS Network.  Their website is colorful and attractive with many opportunities for interaction.  The interaction component includes areas such as First Person (for shared stories), Pictures of Love (for sharing photos), and a discussion area (to subscribe to for e-mail conversation).  Links to other sites and available resources round out this mostly family and bereavement oriented site. 

SANDS:  Stillbirth and Neonatal Death Society

http://www.sands.org.au/

SANDS is a support network of volunteers in the United Kingdom, seemingly similar to bereavement organizations in our country.  Their attractive and easy to use website details services they offer for families and for health care professionals.  Descriptions of their publications they provide are on-line with almost every area covered, from grandparents and siblings, to sexual problems following a stillbirth, to next pregnancies.